Dementia Care shouldnโ€™t be faced alone: how Family and Friends can help Carers

Caring for a loved one with Dementia is physically, emotionally, and mentally exhausting. Yet many friends and relatives donโ€™t fully appreciate the immense burden Carers face. Many Carers are left facing caregiving responsibilities on their own.

Over a third of Dementia Carers report a decline in their own health, and 94% suffer from sleep deprivation. They are more than twice as likely to develop depressionโ€”one of the biggest risk factors for Dementiaโ€”and are at increased risk of cognitive impairment themselves.

The relentless demands of Caregiving can lead to severe stress, isolation, and, far too often to total exhaustionโ€”commonly known as โ€˜Carer burnoutโ€™. Carer Burnout occurs when long-term emotional and physical stress and exhaustion leaves a Carer feeling overwhelmed, hopeless, and emotionally drained. It can result in resentment, frustration, and a sense of losing control. Without proper support, many Carers will struggle to keep going and the quality of Care the Person with Dementia receives will suffer as well.

This is where family and friends can make a real difference. Small gestures can go a long way in easing the burden and helping to prevent Carer burnout:

  • Offering a listening ear, acknowledging the Carerโ€™s efforts, and showing kindness can provide much-needed relief.

  • Learn as much as possible about Dementia and Dementia Caregiving and offer to brainstorm on solutions to caregiving issues a Carer may be having. Avoid giving advice assuming the Carer hasnโ€™t already tried something  you are suggesting. This can feel dismissive rather than helpful. Build an understanding of what is happening instead.

  • Practical support is invaluable. Instead of a vague โ€œLet me know if you need anything,โ€ offer something specific: โ€œCan I do your shopping?โ€ or โ€œWould you like me to sit with your loved one while you take a break?โ€ Regular respite is crucial, as even a short time away allows Carers to recharge, making them better able to cope. Simple acts such as bringing a meal, helping with housework, or running errands can make a significant difference.

  • If youโ€™re able, offer to Care for the Person with Dementia for a while so the Carer can have time for themselves. When visiting, come prepared with activities, such as taking a walk, doing a simple crafting project together, or reminiscing over a photo album.

It helps to understand the communication challenges that Dementia present. Asking Carers what to expect and how best to interact with the Person with Dementia can make visits more positive for everyone.

Supporting a Carer isnโ€™t just about easing their workloadโ€”itโ€™s about recognising their struggles, offering practical help, and ensuring they donโ€™t feel alone in this journey. Your support, however small, could make all the difference.

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